Beth,

Thanks for your inquiry!

It is hereditary in most respects, the studies show that there is a 50 - 50 chance that is is passed down generation to generation.  Two of the three siblings in my family have been diagnosed.  They do not have a genetic test at this point.

I do think it is a bit unusual to have two siblings being diagnosed.  I am now finding more and more people with this through word of mouth.

Warren

My Name is Warren Perez and I was diagnosed with CVID about 15 months ago.  I was diagnosed about one year after my younger brother was diagnosed.  It is a challenge to manage this disease and have seen with my brother when you get sick it is a bit more to handle than before being diagnosed. 

I wanted to start a blog to learn more about the disease and as a group network to discover any type of reseach being conducted on CVID.  As well offer support and ban together to see what we can do to bring more awareness to this and additional attention may spark additional options down the road.

Please feel free to add you experiences with CVID from a patient, friend or a family member’s point of view.

Warren Perez, Lexington Kentucky